Tell Me Again Why You Can’t Work?

I find it hard to make friends at this point in my life. Not only are most of my peers are parents and occupied with the ubiquitous task of raising children, but I also don’t know who is safe to be around. When I meet someone I literally have to ask myself, “Is this person going to be a positive or a negative? Will they hold ableist views? Do they have the patience and understanding to be friends with an autistic person?

Most of the time, new people I meet bend towards the ableist side of things: they have no patience or understanding of what it means to be disabled and how difficult life is for people like me. This happened this morning. A person I’ve met since coming to Oregon posted a meme of a man who was a double amputee, his legs, and was working a construction job. The meme said, “Tell me again why you can’t work.”

Well, let me tell you. Again.

I got my first job at age 16 as a dishwasher for Friendly’s Restaurants. I quite a month later because the noise was too intense, and the pace was too fast for me to keep up. I worked pretty consistently for the next 20 years. I paid my way through college by always having a job and I worked full-time for my final two years. I got fired or “let go” of three jobs during this period, either because I made a series of social blunders, which weren’t tolerated, or I burned out (I was taking a full load of classes and was involved in student government, etc. on top of the unknown autism).

When I graduated college, I began working with kids who had “behavioral health issues”. Mostly oppositional defiance type stuff, but also autism all over the spectrum as well as attachment disorders. I worked this job for two years before getting another full-time job on top of it. Then I moved to New Mexico, where I continued working full-time at various positions I would eventually leave because I was burnt out by my autism and PTSD. I was a social worker, a landscaper, a gardener, a farmer, and finally, a therapist.

Here’s the pattern I would go through with a job over the past 25 years: I hit the ground running and immediately make myself as indispensable as possible. I work incredibly hard, take on a lot of projects and responsibility, and I shine as an employee for about a year, sometimes maybe less. Eventually I would burnout and become suicidal. I often ended up in the hospital for suicidality and would be forced to quit whatever job I was working. I took the initiative and got my master’s degree, and even finished a year and change of a PhD (which I left partly because I wanted to and partly because I was burned out). I tried to better my working situation but by the time I was 36 it was obvious my mental health was a long-term disability, which we of course now know is autism. It was always autism. Even part time work was untenable.

What causes burnout in autism? Social interaction, constant following of neurotypical societal norms that don’t fit with autism, making eye contact, trying not to fuck up social graces in the work place, masking anxiety and autistic behavior, constant overstimulation of sense with no time to recover, but most importantly: Having to be on stage every second of the work day so no one knows how hard things really are for you. If you don’t have autism, you’ll never suicidality and if I hadn’t been pulled from the work force I’m fairly certain dying by suicide would be a swift end to my suffering.

Adults with autism have incredibly high suicide rates because they are forced to work in environments the complete opposite of ideal, and they suffer in silence. Most autistic adults try and mask their autism, and this causes a great deal of stress and shame. When you are putting all your energy into not losing it at the work place you are inevitably going to lose it when you get home. Every task becomes much more difficult, like you’re moving underwater. Dishes don’t get done, rooms get messy, laundry piles up, hygiene becomes neglected. Forget about any wellness practices getting completed. I was just too exhausted to do any of this stuff.

Constant burnout with no recovery time does not work for autists. Our autism will decompensate (worsen) and it snowballs leading to complete lack of functioning in all areas of life. This is why I can’t work a real job. This is why I stopped trying. I didn’t stop working because I am lazy. Far from it, as anyone who knows me would say. I didn’t get on disability to fund my music. I did it because I had no other choice.

Let’s talk about what disability looks like. I get an $800 deposit each month that is supposed to cover my medication, food, utilities, and rent. Considering I paid into disability for 20 years, this is a meager amount. I am privileged because my wife has an amazing job and we’re able to afford our food and rent and all the other stuff, but it’s still hard and we are constantly on guard about money. As far as my music goes, I make very little. Some months are better than others, but for the past year plus I haven’t been able to make it on stage on a regular basis BECAUSE I’M DISABLED. See, even playing music requires so much effort that I often can’t do it and need to take months off from playing.

Anyone who thinks people on disability are doing it for a free ride is a dumb shit. If something happens to my wife I am completely fucked financially. I look at people living on the streets and think, “I’m one tragedy away from that life.” It’s a constant thought in the back of my head. It has been ever since I started being a social worker back in 2006. I was always afraid I’d become a client, and now I have.

Mocking people with disability shows an incredible lack of maturity, understanding, and empathy. I won’t stand for people like that in my life. It’s no use arguing with them, these days when you argue with someone you may as well be arguing against yourself. Also, arguing isn’t a strength of autism. It makes me uncomfortable. Instead, I’ll just write this passive-aggressive blog.

I don’t like being disabled. There are a lot of things I wish my brain was able to do that yours can, and one of them is handle working a job. But I accept my disability and its implications for my life. There’s an amazing amount of value in my autism and I wouldn’t trade it for the world.
People who aren’t disabled will never understand disability unless they work hard to wear the shoes of someone else. IMG_2796

My Greatest Fear

I can’t remember a time when I haven’t had twenty irrational, unfounded fears circling my head. These anxieties can shut me down, can cause meltdowns, and are always hanging out with my depression. I’m pretty sure it just goes with the territory when you’ve had a life like mine, and honestly, I don’t know what it would feel like to live a life free of crippling anxiety, so don’t feel too bad for me.

There is one fear so pervasive, in the front of my mind and all times. It causes more depression in my life than anything else I can identify. I think it is the fear of many people in my situation.

I’m scared to death of my wife dying.

Most likely, my wife and I’s relationship is not like yours. First, we were best friends for a decade before we got romantically involved. When we did, we knew it was forever from the first kiss. Because we were already best friends. Furthermore, we have dealt with more adversity in our marriage than anyone reading this will ever know. We are madly in love with each other, we only want to hang out with each other, and we go through some of the toughest shit a family can go through. Together.

Damnit. None of these words are expressing with our marriage means. It’s unconditional love at its purist. It’s unconditional support and its most powerful. It’s constant companionship; I would literally rather spend 10 minutes with Deborah than any amount of time with literally anyone else (sorry, Obamas). This isn’t the lip services I hear coming from people’s mouths. This is the truest thing in my life.

Deborah not only loves me, hangs out with me all the time, snuggles, raises the dogs with me, she also provides extremely important care for me. Deborah is what we in the disability world would call a “Caregiver”, and she is extremely good at it. Because of her vast, intimate knowledge of who I am, who I have been, and who I want to be, she is (almost) perfect in this role. No one else could ever do what she does, and that’s the truth. No one.

When I think of losing Deborah, my honest first reaction is “Well, that’s a wrap on ol’ Russ, too.” And I would immediately down a bottle of clonazepam and fall into the forever sleep. Not because I have some ridiculous notion that she and I would meet in some afterlife. No, I would die by suicide because life would be too hard without her, and it would no longer have a point.

Here is my greatest fear: I would lose the love and companionship, but almost as important I would lose the support, the caregiving. You don’t understand, I have such a hard time with life-skills. I can’t pay my own bills, I can’t hold down a job, I can’t remember what day it is or what I’m supposed to do tomorrow. I can’t keep track of my appointments or even my daily medication. All the intricate systems we’re developing to keep my life glued together would completely fall apart. I would not only have lost the most important person in my whole life, I would be destitute.

I would be in abject poverty. Most likely I would end up in a group home, which is about the worst thing I can imagine having consulted for them in the past. See, I’ve worked with people like me when I was more functional. I know the system I would become a part of, a system Debo and I are working hard to avoid.

Why am I saying all of this depressing shit? Well, I’m pretty depressed and melty today. I have a friend going through a similar situation, so the issue is in front of my head. But most importantly, YOU NEED TO KNOW.

You need to know because if this ever happens I’m going to need you, my friends. I’m probably going to have to live with someone. I’m going to need a lot of help. I’m scared that won’t happen. This blog is an insurance policy for an awful life-situation that’s completely plausible. I don’t have a family, so to speak. My father and I talk, my two cousins and I talk, but that’s it. My safety net is torn apart. I will have nowhere to go but a bottle of pills.

I’m not trying to scare anyone, or be overly morbid, I’m just trying to be honest. I always try to be authentic, this is no different. It’s a future cry for help before it’s too late.

PS, Deborah is in fine health. We both are, other than my usual bullshit.

Time for Change

I have been Russell James Pyle all my life. Russ, RJ, Russell, Russell Sprouts, Roos. I’ve gone by a lot of names. My first two solo recordings were under the moniker Russell James Pyle, for what reason I don’t know. I guess I thought it sounded cool. RJP has been an anchor in my life, as all names are, but it’s time to pull the anchor up and move forward.

A lot of people have noticed I’ve changed my professional name and it will become much more pronounced with the release of my latest album in April. In the spirit of authenticity, something I prize a great deal more than any other trait, I’d like to offer a type of explanation. While not exactly candid, it provides some insight into my choice.

Russell James Pyle was abused. Russell James has stood up to the abuse and is proactive about healing the trauma left in its wake. Russell James Pyle had no awareness of Self. Russell James is aware of the true nature of the Self and uses this knowledge to grow. Russell James Pyle was lonely, especially in groups, and even amongst friends. Russell James is confident his true nature relies upon solitude and recognizes the immense beauty found in being alone.

This has been a year of change for me. The changes have come from a deeper understanding of my troubled mental health and I believe they will lead to a more enriching and engaged life. In order to move forward I needed to leave some things behind me. All the shame and rage and all the toxicity associated with my past has to be purged. It’s a life-long project for me. The first step was changing my professional name to reflect the person who has emerged over the past twelve months.

The name change was flying around the back of my head as I was recording my album, and there’s no coincidence in the parallel between a change in musical direction and the change in the moniker. As I was putting the finishing touches on the album in September, I had a deeply personal experience and it pushed me to make the decision. Although I won’t detail the experience (it’s personal), suffice it to say it was a watershed moment in my life. My core beliefs have been based on my past and these beliefs are the foundation for everything else about me. One does not go about this much schematic change willy-nilly. It has been difficult, more so than I could have imagined.

Letting go of a narrative informing the way I have felt and behaved for decades is some serious business, and I’ve had to go to work. It’s painful, but I’ll continue the work in 2018 because it’s worth being done. Changing my name was the first step in another long hike. I can’t wait to see the view at the end.


I Can Hear You Now

Although mental illness is generally a gestalt of varying concerns and the human psyche has many factors contributing towards its health or detriment, the practicing model for decades has been to reduce it to one or two problems and treating them according to formula. While I was a practicing psychotherapist, and while I was in school to become one, the diagnosis was and continues to be the reigning model to direct treatment of mental illness. Diagnoses are problematic for many reasons, and perhaps there’s a whole other blog needing to explore this fascination with label everything refusing to fit into what we consider “normal”. My diagnoses are as follows: Posttraumatic Stress Disorder, Major Depressive Disorder: Chronic, Generalized Anxiety Disorder, Obsessive Compulsive Disorder, I have a foot and ankle on the autism spectrum, and I have a rare form of hyperacusis called misophonia.

This is a long list of ailments, yeah? The point is, not one of them really tells my story. Mental health tries to reduce what is ailing the patient to one or two things, and this is a result of what we call the “medical model”. The medical model seeks to reduce a patients concerns (I refuse to say symptoms, as this too is part of the medical model) to one or two diagnoses. It makes it easy to say, “Oh, you have an anxiety disorder. Take 100mg of Zoloft at night and then you’ll be able to wash the dishes again instead of being stuck in your bed with depression.” But the dishes still don’t get washed, and although one may feel a relief for a time, the depression, anxiety, mania, and general psychic pain return, unabated, often stronger than before. But before the anti-med people get on their high horse, Zoloft, or any other medication, is not the problem. The problem lay in understanding our mental health conditions to be the result of one thing. We want to pinpoint mental illness to this very specific thing we know how to treat, take the pill and be rid of it.

If we take a look back to the laundry list of diagnoses I carry with me, we can see the contradiction taking place before our eyes. I’ve been seeing the same psychiatrist for twelve years. This is uncanny in today’s world of HMOs, young residents, and unstable psychiatric practices (due to insurance policies, I’m sure). My diagnosis has changed several times and we’ve finally locked in on some words best describing what I go through so the Medicare will pay for it. But these words mean nothing. I realize this summer my mental health isn’t just depression, it isn’t just PTSD or OCD, it’s a lot of different things rolling into one big ball of hot garbage.

The realization came when my psychiatrist referred me to a therapist in his office who specializes in children who have autism. We spoke about some of the things my wife and I noticed as triggers, some of the behaviors resulting from those triggers, and everyday stressors affecting me. What we were told didn’t quite surprise us, but it may surprise you, faithful reader. I fall somewhere on the very mild side of the autism spectrum. Furthermore, my auditory processing disorder was having a greater effect on my mind and behavior than I’d ever previously understood. While the DSM-V lists autism as a spectrum disorder, new research shows this to be wrong. At this point in time, autism is understood to have up to 50 distinct manifestations, some of them severe and some of them barely noticeable. Although most people on the spectrum struggle greatly with social skills as well, what puts one of my feet firmly on this spectrum is something called sensory integration.

Sensory integration is the ability of the brain to filter out one sense from another. For example, if someone were to run their nails over a chalkboard, many of you would have an adverse reaction: your body would tighten, your eyes would close to squinted slits, and your face would contort to a brief grimace. Now picture this happening when cold water hits your hands: it doesn’t feel cold, it burns with pain. Let’s take the scenario and apply it to the sense of hearing. When a neuro-typical person hears a dog bark across the street it makes no difference in their brain. The brain may register it, but not enough for the Mind to notice, let alone react. When I hear a dog bark across the street I may as well be ramming a nail into my ear. It’s physically painful and I feel like I’m bursting out of my skin. This is the parasympathetic system, or the system supposed to help regulate stress, in action. The problem is, for someone with sensory integration issues, the parasympathetic system is always turned on. Same thing with PTSD, so there you go. I got a double whammy.

Seeing someone who was a specialist outside of the box we’d be working in for 12 years has been life-giving. She affirmed it wasn’t just PTSD causing all of my turmoil: It is a combination of things that lead to my meltdowns, my suicidality, and my general suffering in life. Looking at the concerns from the lens of autism we were able to discover new concerns which are treatable. (Unlike this pesky PTSD, which doesn’t seem to want to go away, ever.) The first thing we decided to tackle was my auditory processing disorder.

We made an appointment with an amazing audiologist and after going through a thorough assessment we had tangible proof my brain has always functioned differently than others, even if I didn’t have the PTSD. Hyperacusis, in laypersons terms, means I hear way more than most people. Every little sound is amplified, and I also have trouble distinguishing sounds when they’re surrounded by other sonic intrusions. Moreover, I have a rare form of hyperacusis called misophonia, which basically means it’s way worse. So hyperacusis is found in something like 10% of the population (don’t quote me on that), and misophonia happens in 3% of people with hyperacusis (quote me on that, though, it’s true). So I have the rarest form of an already rare condition. It has made life miserable.

Washing dishes? Can’t do it. Clanging plates might as well be a hammer to the head. Loud cities? Get the fuck out of there with that shit, I’ll go crazy if I’m there for more than 12 hours. Crazy, seemingly insignificant things trigger it: dogs barking (ours are pretty good, so that’s nice), garbage trucks outside, hitting a speed bump faster than expected, a book dropping three rooms away, and when it gets really bad, late at night, even a pin drop. Have you ever talked to me in a bar or after a show? I can’t hear a damn word your saying, I’m just nodding and smiling because you’re probably saying something awesome. It’s misery, and the weird thing is, I thought everyone’s ears were like this. I had no idea what it was doing to me and how impactful it was towards my cluster of mental health knots. I cried during the assessment with the audiologist when I realized I wasn’t going crazy, the way I hear is normal for someone like me, and it can be treated.

Audio integration therapy (AIT) is a treatment process to strengthen the ear muscles and bring the processing (nerves) back to balance with one another. I was warned since my case was so severe, a complete recovery was not likely possible. Whatever, I just want a little relief. The treatment was two weeks long, one hour a day for five days straight with a weekend in between. I woke up early in the morning and my wife drove me to the office, where I would be led to a back room with a table to the side, a rocking chair, and what looked like some equipment I’d see at one of the studios I record in. They gave me a set of headphones as I sat in the comfy chair and the treatment began.img_1816



This weird thing is what caused all my pain…


I attempted to sit peacefully my first day, but after a few seconds, I realized it wasn’t possible. The music coming through the headphones was awful in content (nursery rhymes for the kids that come in, awful Muzak quality versions of rock, jazz, funk, pop-country, and reggae), which is easy to describe. I mean, for a musician with fairly nuanced tastes it’s a bit difficult to sit through the music alone. It’s difficult to describe the other part of what’s going on when I put the headphones on my ears. I’ll do my best: imagine putting on shitty music, say Nickelback, on your headphones, the taking a tone knob and rapidly turning up the treble at the loudest moments of the song, like where the snare drum hits, or a hi-hat barks, giving it a harsh, tinny sound. Alternate it with doing the same thing to the bass end of the tone. I know I’m speaking musician language here, and I hope you can get the gist. And while one of you dear readers may not have had an issue with it, it would have been a minor annoyance you barely paid attention to, for someone with misophonia it is quite painful.

I cried each session for the first week. Sometimes for fifteen minutes, sometimes for five, but for some reason working out my ears brought up a grip of emotional catharsis that must’ve existed deep within my subconscious and was pushing to get out for decades. Deborah often stood behind me and softly rubbed my back when these intense, unexplainable moments would occur. We were unable to talk, but she said “I love you, you can do this,” by osmosis. It was the first way we learned to deal with the uncomfortable treatments.

I quickly found as soon as I could concentrate on something else I had to engage it. The first fifteen minutes of my sessions were often too painful to concentrate on anything, but as the hour wore on Deborah and I would look at a slideshow of pictures from the last year, or I would read comic books. I found these things easy distractions from the painful aural experience. When the hour was done I was already clasping my bag of stuff shut and putting one arm into my jacket before they could come in and get the headphones off.

It became a difficult morning routine: wake up, get together enough to move, have a minor meltdown on the way to the office. The after effects were similarly difficult. I was irritable, snippy, and downright incorrigible at times. But I didn’t meltdown on the days and nights following the treatments, they came later. I think I got pensive in the later hours of the day, dreading having to wake up and do the treatments again. When we came to the final day and the assessment showed improvement Deborah and I both exhaled a sigh of relief, but we weren’t prepared for what was to come.

Meltdowns. Five in three days. A lot of broken things. It was bad, and this is where we are now. I don’t know if it has anything to do with the AIT, but it certainly begs the question. Last week my doctor put me on more medication temporarily to “break the cycle” of meltdowns and it sucks. It slows me down, makes me feel like I’m under the ocean in one of those old-timey scuba suits with the helmet and hose perturbing from the top. I played two shows under this influence and they went well. I’ve had a couple meltdowns in spite of the meds, but they’re working. More importantly, they’re temporary.

We won’t see real change from these treatments until three months out, but after that, we’ll see exponential change every three months for up to a year. I find it strange and fascinating the effect is delayed in nature. I love the brain, it does all sorts of crazy shit.

So my mental health doesn’t boil down to one thing. I’m beating the shit out of the PTSD in therapy, I’m taking some power away from aural burden with the AIT. Next, we are hoping to work with an occupational therapist to help “soften” the house and teach me how to be a musician and stay phonically healthy. I’ve come a long way, and there’s still a road to be tread. But I have new shoes, now. Hopefully, I’ll be able to show them to you soon.



I met my wife, Deborah when I was a junior in high school, somewhere around 16-17-years-old. She had long blonde hair, down to the middle of her back, she looked pretty sporty with her constant hoodie, and she hung with a crowd I wasn’t quite familiar with. Deborah worked on the set of a school musical where I had a supporting part. I don’t remember much interaction with her, as she was the quiet type and I was more interested in fitting in. Fitting in, to me, was about being as attention-grabbing as possible, so I was loud, ready to do anything for a laugh, and seemingly always on stage.

The following year I went on a water-skiing trip to which Deborah was also invited. We actually talked on the boat: Deborah was smart. I was intimidated because I️ was dumb (at least this is what I was told throughout my life). Deborah was in all the smart classes, had a position on the yearbook staff (not nerdy at our high school, more elitist jerks than anything else), was a star soccer player, and had an impressive collection of hooded sweatshirts. I only had one, it was black, covered in punk patches, and it smelled pretty bad. IMG_0009 We sang in touring choir together (I can’t remember why I joined in the first place, I was a constant troublemaker and foil to our director’s attempts at order). We got to know each other on a weeklong school trip to a monastery in Massachusetts. There may have even been a graduation day picture taken of us; who knows, it was 20 years ago.

In college, we became best friends, and quickly, via this new technology called “E-Mail”. I was going to school in the middle of nowhere Kansas and she was in the mountains of Virginia. Almost every day saw me drudging across the small but cold campus to the computer lab and hoping to get another intriguing response to whatever thread we had started. The conversations opened my mind to new ideas as well as a Deborah I never thought I’d know. One time I expressed shock over her use of the word “fuck” in an email. That was my word! Not hers! This email friendship came to a head when I️ decided to transfer to Eastern Mennonite University before the start of my junior year of undergrad.

Deborah and I had a standing lunch on Thursday afternoons during the fall of 2000. She continued to teach me things in such a calm and loving way. We would talk about my burgeoning mental illness, theological debates over issues such as the LGBTQ community (I was a theology major), philosophical debates over whether a soul exists or not (I was also a philosophy major), and we would talk about the state of social justice in the world (we were both also social justice majors). Our time in college watered the seeds of our friendship, and although we ran in quite different circles most of the time, I considered Deborah one of my best friends, and certainly the only one who was truly reliable.IMG_0008 We graduated college and Deborah moved to Philadelphia, whereas I settled in Lancaster, PA, a smallish burg about an hour west of the urban sprawl of Philly. Lots of friends moved to Philly, so needless to say I was there pretty much every weekend, trying to extend the college experience. Surprisingly, I saw Deborah very little during these visits since I was still caught up in a party lifestyle where my Philly priorities were about seeing Phillies games and getting as drunk as possible on Neighborhood Specials (if you know what it is, you know what it does). This practice changed with the death of my uncle.

When he died Deborah stood right beside me. Every friend I️ had in Philadelphia at the time was there for me, but Deborah stands out. She sat on her stoop with me for hours as I cried, she rubbed my back softly to let me know she was there and was a comfort. Deborah eased those days until they passed. Then her tragedy struck, and I felt unable to reciprocate the comfort due to my own mental illness finally showing its full strength.

Deborah’s father died in 2005 from cancer. Deborah had been living with her parents, acting as a caretaker until he passed in July. Not much for crowds, I️ stuck to the back of the hall where his memorial was going on and sent my love and care to the front row where my best friend sat. I️ wish my personality allowed for me to have been right in the thick of it, but no. And by July of the following year, I️ would be 2000 miles away.

Deborah was the first friend to visit Albuquerque after I moved here in 2007. She came to see me because I’d had my first major mental health episode a month or so prior to the visit, and she wanted to come out and be there for me. I️t was the first time someone had sacrificed their own desires, money, and time to help me through what was shaping up to be a storm that would engulf my life in the years to come. A storm Deborah would weather with me. IMG_0034 Deborah came to visit a couple more times on happier occasions. During those times I️ was engaged to a woman and the relationship was anything but healthy. After this woman and I️ split, Deborah and I️ spent at least an hour a day on the phone with each other in the summer of 2010. She made plans to come visit me for Thanksgiving, and we made plans to meet each other in San Francisco when I️ was going up there to explore graduate study in transpersonal psychology. This particular trip was colored by a very specific email exchange a few weeks prior to.

See, Deborah and I️ have always had a lot in common, but our pasts have shown major differences as well. I️ was the party guy. I️ thought this was my authentic self: gregarious, outgoing, extroverted, loves to drink and yell and cause a scene. Loves to be the center of attention. In actuality, I️ became those things because I️ thought it was what everyone else wanted me to be. This fake personality was driven deeper as people expected me to act this way. Who was I️ to step out of their pigeonholes For someone with neurological concerns effecting my social skills, I️ was being rewarded for the behavior and it cemented itself within my locus of control for quite some time. Deborah, who was never a teetotaler, was much more subdued (this is not to say Deborah didn’t enjoy going to parties). This main difference caused a bit of a schism in our friendship, seeming to confine it to more sanguine times.

During the summer of 2010, I️ feel I️ grew into myself. I️ grew up, I️ became what I️ was meant to be. Deborah was on the phone with me every night, listening in as this process took hold. For someone who is not neuro-typical, it takes a longer time to find one’s self. I️t certainly was the case with me. But as I found myself, I also found someone else. Slowly, my attraction to Deborah, both physically and as someone who would be a life partner, grew.

Deborah began coyly approaching the subject of pursuing a romantic relationship early in 2011 during a trip I️ took back east to see friends. Me, being mostly oblivious to people tones of voice, expressions, and passive expressions, had no clue she was putting out a feeler. She sent me a not-so-coy email not long after, explicitly talking about exploring a relationship with me. I️ sure panicked. Here was my best friend, the only one I’ve ever felt I️ could rely on, asking me if I’d be interested in a romantic relationship after all these years. I️t scared me: I’d never been in a healthy relationship. I️ had no idea what it would look like or how I️ was supposed to act. I️ responded in kind with a full-blown rejection email, refusing to discuss this issue, because I thought a romantic relationship would elimnitate a friendship I so greatly needed.IMG_1732 Now we’re in San Francisco, spring 2011, a few weeks following the email exchange. Deborah was visibly upset and I couldn’t understand why. Now, 6 years later and armed with a greater understanding of my neurology and the effect it has on my social skills, I know why it was so confusing. We actually had a good time on the trip, but looking back, it should’ve and could’ve been so much better. I remember flying home confused, because I did love Deborah, and I did see a future for us.

Fast forward a month or so, I completely fall into one of the top five meltdowns I’ve ever experienced. I ended up in the hospital due to coming very close to dying by suicide, and my father came to “assist” me with reintegration. Needless to say, this was a bad move. My disparate relationship with my father meant he had no idea what was going on and how to treat it. When he left I was still actively suicidal, afraid I was going back to the hospital. Deborah called. “Do you need me out there now that your dad is gone?” I’ve never answered something with more surety: “Yes.”

When I picked her up at the airport not long after, I saw her, we embraced, I cried, and I immediately knew I was in love with her, and the dark cloud enshrouding my brain immediately lifted. Once we got to my meager South Valley house and started drinking a little scotch and looking at old pictures… well… nature took its course. From the moment her lips touched mine I knew we would be together forever, and I knew this woman would stand by me and lift me up when I couldn’t walk on my own. As we lay there, our first night as a “couple”, something was said between us, and while I can’t think of the exact words the sentiment is clear as day: “So I guess this is it, this is our lives. I love you.” After almost a year of long-distance dating, she moved to Albuquerque and we were married. This is where the real story starts.

My mental health and the composition of my neurology makes life difficult for both of us. Deborah has to watch me suffer in ways my friends, fans, and readers have no clue about. She was watched me destroy as well as create. She’s seen me going to a treatment center and made the weekly visits, including having Thanksgiving there in 2014. She’s flown across the country, taken buses to rescue me when tours have fallen apart and I’m stuck having a nervous breakdown in some state across the country. She holds me when I’ve completely lost all sense of reality. She works from home when I’m actively suicidal to watch over me so I don’t do something we’ll all regret. She is a balm to my ever-deepening wounds.IMG_0010 I’m grateful for my wife, my lover, my best friend, my defender, my rescuer, my balm: Deborah.

And you should be, too. Your friend Russ would be dead if not for her.

Me, Too: Afterward

TW: Sexual abuse and assault.

It’s been a month since I published my post detailing my story of sexual abuse, assault, and the misguided efforts to corral my emotional disturbance. The response was overwhelming: literally, thousands of people read the post, most of whom I don’t know. Hundreds of people commented on Facebook, again a good many of whom I do not know. The remarks were securely supportive. Before the end of the first day, I realized I needed to write a follow-up post about the experience of disclosure.

I did not wake up the morning I wrote and published the post thinking it would take over my week. I finished writing it, read it aloud to my wife, and commented, “You know, I think a hundred people might read this.” I shared it on Facebook and within thirty minutes my prediction came true. As I watched the views of the post tick upwards, and a number of comments and shares it was getting on Facebook followed, I became a bit uncomfortable. It was happening very quickly. By noon the number had jumped to 500. By evening it was over 1,000. The comments posted on Facebook were drawing tears from my eyes the whole day. By the time I went to bed the uncomfortable feeling had changed.

An old friend who had her own experience with a high-profile disclosure of sexual assault sent this comment to me: “That weight. It’s a story we carry day to day but don’t realize how much heavier it got until we released it. Then the words from strangers come in and lift you so much higher you feel like you’re floating. Enjoy this…” I awoke with this thought the following day and held it very close, observing the feeling of lightness, the feeling of a dark burden lifting. The comments and views kept ramping up steadily, and the feeling of weightlessness continued into the night and I slept dreamlessly and without interruption. It was a new feeling, a difficult one to understand.

By disclosing our trauma and shining a light on the darkest corners in the closet of our minds we take the power away from the shadows. That which is of the night cannot live in the light of day. The floating feeling is what happens when the power returns. Think of it like this: if you hold a 50-lb. dumbbell for 25 minutes straight, then put it down and pick up a glass of water it will feel like you are holding air. This is my experience of disclosure. This is the impetus for growth.


Let some light in.


Posttraumatic growth is the term used to describe the emotional resilience of an individual when he or she survives a traumatic event. Generally speaking, those of us who have experienced trauma come out better off on the other side. It’s a very difficult idea to grasp: these awful experiences make me a better person. It’s hard because all I want is to be “normal” or “neuro-typical”. All I want in this world is to have lived a life where I’m not tormented by this terror. To reframe the trauma as a stimulus for emotional growth, as something positive, has been outside of my skillset. The dark pain takes over, throws scales on your eyes, and puts out any light beginning to shine.

I studied posttraumatic growth formally while in graduate school. I applied these techniques in my own practice as a psychotherapist. All the while a constant question rings in my head: What about me? Where’s my growth? Why is this not happening to me? I was doing everything right: meditation, going to counseling myself, doing EMDR (look it up), keeping up my psychiatry appointments. I was following the instructions but it wasn’t turning my way. In fact, things seemed to be getting worse. My depression would linger for months on end, not giving an inch or a minute of relief. For years this has been my story, for decades this has been my path. No respite, no growth, just regression, and decompensation.

For me, the stalwart walls my trauma had erected fell before the might of revelation. Posttraumatic growth is no longer an impossibility; it now feels inevitable. Strength and power, long since forgotten and abandoned, came roaring back in torrents. All of this by the end of the second day following my post. When I awoke on the third day I checked the views and comments: they were still coming in and piling up. Throughout the day I noticed I was checking obsessively.

As a person who has been diagnosed with obsessive-compulsive disorder (caveat: don’t trust mental health diagnoses) I know I run the risk of turning anything I do into a compulsion, and this is exactly what happened on the third day. I was addicted to the comfort my community was providing. There was a large void in my life and the supportive comments, texts, and messages from both complete strangers and old friends were rapidly filling it. It makes sense a compulsion would develop. By the end of the third day, I was quite aware and disturbed by it. So, I did what we all should do every once in a while: I unplugged.


Long walks, gathering wood with my wife and our best buddies. Jemez Mts, New Mexico.


I spent the weekend camping with my wife, our dogs, and one of our closest friends. No reception, only brisk mornings, long walks with the dogs and the love of my life, and campfire’s crackle to shepherd me into sleep. It broke the compulsion. By the time I returned home some of the furor had died down (although it wouldn’t come to a complete standstill for another couple weeks). I was overcome by a desperate feeling: OK, what next?

The depression returned the week following the post and I believe it had a lot to do with coming down from the mountain. I saw from a new perspective, I was given something long denied me, I was comforted, and I was victorious, but now I was on the descent. The comments had slowed to a trickle and I was having some serious withdrawal.

I’m still dealing with the depression right now. While it hasn’t magically disappeared, it feels different. It feels finite. My psychiatrist remarked, “I think you’re on the back end of this thing,” during a visit a couple weeks ago. This is a man who has been seeing me for 12 years, treating my depression and strategizing time and time again how to cope with it. To hear him say those words meant the world to me because he wasn’t lying. I feel it. It’s incredible to have a ray of light shine through the darkness. In time, more light will break through. It’s all happening.


A much different picture than a month ago. (PC: Sara Lazio)


Now we’re a month out from the post. I’ve been putting this one off for some reasons, but I’m glad it’s finished. Another beam of light will come from it. I know I won’t lead a typical life, and I know my PTSD and its cousins, depression, and anxiety, are here to stay. But I know I can make a life in spite of them. I can live with them. In time, I may finally actualize what I’ve been thinking for a decade now: I’m a better person because of them. This is a big mountain, but I’m definitely in training for it.


Oh, Big Mountain. I’m gonna climb.


Me, Too.

Trigger warning: Sexual assault, rape, child abuse, physical abuse, suicidality

Disclaimer: the #MeToo movement was conceptualized by a woman of color, TARANA BURKE, in 2007 to raise awareness for women of color in low-income/low-priority neighborhoods where rape crisis centers are nonexistent and there is little to no awareness of the extent sexual assault and rape is perpetrated within these communities. Furthermore, women across the world are now using the hashtag to raise awareness for the level of sexual harassment, assault, and rape occurring every day at the hands of MEN.

 I recognize that the #MeToo campaign is by women, for women, and a clear message to us men. By no means is this an attempt to co-opt or appropriate the campaign for men. I was inspired by the courage of the millions of women posting on social media to finally tell my story.  

A blank screen. It’s how all this shit starts, every time, for every writer. A solid, clean, white sheet taking up all or part of our computer display. Sometimes the pure, blank screen looks mildly irritating; sometimes it looks as open and fresh as a spring day, waiting to be filled with lots of possibilities. Today my screen looks like a black hole, sucking the life out of me. There has been a black hole in me for 33 years, extracting my life force with a ferocious indifference like the immense forces of gravity allowing no light to escape their grasp, deep within the freezing confines of space.

I’ve written about this black hole in vague, uncertain terms before. I typically label it “my trauma” or “my PTSD”. People often assume my PTSD comes from combat service, an awful misnomer overlooking the essential nature of PTSD. I always say, “No, something else,” and leave it at that. Those closest to me know the nature of my trauma, and my audience of loving readers knows the extent to which it disables me. In the wake of so much attention finally being brought down on the predatory nature of men, and the brutal, tear-jerking anecdotes my female friends have been posting, I have found the inspiration to tell you what’s up. The real deal. The whole shebang.

I was molested repeatedly when I was 4-6 years old. It was a male babysitter. His name was Joe. I am currently 38, and I continue to be plagued with flashbacks and fear from when I was a small child. These repeated incidents, when discovered by my parents, was not met with sufficient indignation or action. No therapists for little Russ in 1983-84. No prosecution for Joe, who could go around sexually assaulting all the little boys he wanted. This isn’t to say my parents weren’t upset; I’m saying they weren’t upset enough and misread the severity of the entire situation. My mother later said, “You just didn’t seem to be all that affected by it,” (My paraphrase). I have a book she gave me with all of my mental health work since I was a little boy. There is one passing sentence about the sexual abuse followed by a misdiagnosis of ADHD, the diagnosis du jour in 1991. I think this is because my parents felt blamed for leaving me with the babysitter and this resulted in shame keeping them from properly handling it. Not an excuse, they did not do their jobs. In fact, they made it worse.



Tiny Russ, circa 1983-84


As a result of this repeated abuse, the first emotions I remember are fear, shame, confusion, and sadness. I had my first thought of killing myself by jumping off the tallest building in the city when I was six or seven. They’ve continued since. My behavior was severely affected, as it always is when a child undergoes repeated trauma. I acted out, was defiant, had fits and tantrums. This is exactly how a little brain reacts when it is attacked. If fully developed brains of adults have difficulty processing traumatic events, imagine what it is like for a 4-year-old. My behavior should have been met with unconditional comfort and love by my family of origin but was instead met with an open-handed slap, or being hit with a wooden kitchen spoon until it broke, or a belt, or the strong grip of someone three times my size and ten times my age.I got in trouble in school, I constantly got into trouble at home. My sister outright hated me. By the time I was in eighth grade I was full-blown depressed, acting out on a regular basis, and totally down to start trying drugs. An onset of mania (due to improper prescribing of Ritalin, remember everyone thought I was ADHD) was met in my ridiculously evangelical Christian household with a call to the pastor of our church because they thought I was possessed by a demon. No demons here but the demons of sexual abuse by a babysitter, and physical/emotional abuse by the rest of my family. I came to the conclusion that my whole family hated me by the time I was fourteen, I felt absolute lack of love from them. I was a problem to be dealt with aggressively.

As a result, I started seeking out what relief I could find, and what positive attention could be had from this awful world. Through happenstance, I met a 26-year-old man named Warren Green in Midlothian, Virginia (read: This is me putting this guy on blast for the first time ever in my life, so it’s a huge moment). He lived in the Deer Run neighborhood a lot of my friends lived in. He groomed me the entire summer between 8th and 9th grade, providing me with alcohol, weed, picking me up at midnight after I would sneak out of the house. Then, in August of 1994, he raped me. I was about to turn 15-years-old.


Circa 1996, post-rape. The smile is deceptive, the hair is not.

The day after it happened, he called me and said he’d asked Jesus to forgive him. Less than a year later I would make my first attempt at dying by suicide. It would come after I went to my mother and told her I was thinking of killing myself, I was using “drugs” to help me cope, and I needed help. She first told me my father hated me, then she turned her back on me. Within six months I would be living in a boarding school in Pennsylvania, immaturely trying to reclaim my life from those who had stolen it from me. Feeble, short-lived attempts at religion were squashed under the tremendous weight of my trauma, and due to my family of origin’s insane attachment to a destructive, punitive religion, my understanding of what was going on in my head and body was drastically undeveloped and unaware.

During my college years, my awareness increased and my depression/suicidality flourished in such a stress-filled, socially turbulent environment. I tried to fit in: I partied, I made a few weak attempts at attracting women because I thought it was what I was supposed to do, but it didn’t feel right. I didn’t feel like the other guys: I wasn’t interested in sex. I think I talked a good game, but my heart was never in it. I never made moves on women because it made me feel wrong (and if I’m being honest, I just didn’t feel like any women were attracted to me, anyway). If a woman made moves on me and we acted on those hormones, I would feel awful for days, like I did something wrong. Am I a mean person for hooking up? Am I a rapist? Am I a monster? Sex had been completely distorted for me. Something meant to be enjoyable, loving, passionate, and fun had become stressful: a constant worry. A constant understanding, I am not like other men (not much later in life I would be grateful for this difference). Questioning whether any woman would have me, love me, or if I could ever have a real relationship with a woman.

I’m quite lucky to have figured out I was wrong about this last part. My wife and I are walking through the reeds together, gluing the pieces back in place. She and her family show me the love and comfort I was denied so often. My community holds space for me whenever I need it. I feel supported, and while I don’t feel understood I know the desire to understand is there. That’s why you’re reading this, isn’t it?


The effects of sexual abuse and rape continue to plague me on a regular basis. The flashbacks happen all the time. I think about it each time I use the bathroom, each time my wife and I become intimate, even if she runs her fingers through my hair at the wrong time. I smell whiskey on someone’s breath and it immediately takes me to the house in Deer Run and I hear the rapist Warren Green’s voice in my ear.

Then I practice mindfulness: I am here, in Albuquerque, in the arms of the one who truly loves me for everything I am. I’m far away from that evil coast and I’ve made an authentic life in spite of my family of origin, and in spite of the trauma I have lived through. It’s an incredibly long walk, but I will walk on.


Again, I’d like to thank Tarana Burke for starting this movement, and to all my courageous and amazing female friends who empowered me to write this wholly difficult piece. It may be the most important thing I ever write and I am grateful to you all.