I’m driving north out of Cincinnati towards the Indiana state line. The Midwestern sky is polluted with clouds that look like pot-bellied stoves long in use, charred and bowling around, hanging low and threatening. The temperature outside reads 93 degrees and the humidity percentage must be close to matching that number. Inside The Gray Haven, my mind is steadily unraveling: deteriorating into a salad of nonsensical, horrifying thoughts that play on repeat. My brain starts to resemble those black-bellied clouds overhead. No rain will fall to relieve me of the darkness.
“I wish I was dead.” “I should drive my car into oncoming traffic.” “I’m a drain and I’m better off dead.” “All I do is cost money and cause problems.” “I should just die.” These are the statements that run through my head once the pain of depression and the stab of anxiety take over my day, and they are too often accompanied by horrific images of self-harm. There’s a huge difference between having these thoughts and images in my head and actually moving forward with death by suicide, but imagine what it’s like have these ideas and statements cycle through your thinking hour after hour and day after day. It’s the worst kind of exhaustion.
Driving and fighting these thoughts for hours on end pulls all the energy out of me and I end up with nothing left to give. Just like when I was working as a psychotherapist, I end up calling in sick because I can’t muster what it takes to get the job done. Except that “calling in sick” now means that I have to cancel a gig, which takes a lot more courage than leaving a voicemail on my boss’s phone. There’s a good reason for this: I’ve never felt like I have more to give than when I’m singing and playing guitar. The thought of being unable to give what I have is almost unbearable. I’ve written before about how music is the only job I can hold down, but it is obvious music isn’t immune to the thorns of my disability.
And there you go: I put it out there with one short sentence. I’m disabled. That’s the official classification and it’s a much more bitter pill to swallow than any of the pills populating the expansive case in my toiletry bag. I’ve been thinking a lot about my disability on this tour, probably because I feel it’s affect resting heavily on my shoulders. The weight is shame, and it compounds on itself with every passing moment. I am ashamed of myself for my disability.
I held an important conversation with a close friend at the beginning of this tour. This friend is an expert disability scholar and helped me understand the shame I feel towards myself, and the root of the disturbing self-talk that plagues me. I began to understand that I feel a self-loathing because I am not “normal”. Something she and my wife have been able to train my mind on is that “normal” is a misnomer, and my shame is a byproduct of society, not my disability.
Our society has an astonishingly limited view of functionality and worth. Worth is often measured in financial success or notoriety in one’s field. We have been trained to think that if we don’t have one or the other of these two things we are insignificant to the rest of the world. As a result of this training, our world has been constructed in a utilitarian fashion to benefit and serve those who fit the status quo. If you are outside of the ring of normalcy you tend to get left behind. Society turns on those who do not fit in, and as a result, I have turned on myself.
I hate who I am not because I hate the experience of depression and anxiety; I hate who I am because I feel I am less than those of you who are not shut out of life due to a disability. This is wholly incorrect, yet it lay at the root of my entire way of being. It’s been cemented deep within my core beliefs over years and years of mortar applications from society, media, friends, and family. No one means to entomb me with my dark cask of amontillado, but it’s happening just the same. Even the term “disabled” itself has connotations that I’m not whole, that I’m unable to be whole.
“Disability” is unfair, and I think the key lies in dissecting that word. It means that I’m unable to do something, which is true. But the effects of the word are further reaching than that: the societal meaning is closer to “I can’t do anything for myself” than the latter. This is untrue. I’m incredibly able to write, think, and feel. I’m able to play guitar, sing songs, and perform them in front of people. There are times when I’m not able to do that, like last night, but that doesn’t mean I’m unable to do them altogether. Hardly the truth. I’m able to do these things when I’m able to, and that has to be ok.
The world doesn’t work for me and folks like me, so I have to navigate it in a different way. There are times when people don’t understand this and it will repair any of the cement that I’m able to slowly chip away. I don’t think it’ my lot to be free from this, so this is a lifetime work. I just hope that someday I can see myself with the compassion, understanding, and love that others see me with.